Watch our president and vice president introduce NELAD RF (North East Lyme & Associated Diseases Resource Foundation) in this short video.
NELAD is an all-volunteer, nonprofit, 501(c)(3) corporation and all contributions are fully tax deductible
NELAD RF’s mission is to be a vital resource for people struggling with Lyme and its associated diseases by helping them to access effective treatment through education and advocacy, while offering opportunities for financial and emotional support.
NELAD honors the memory of our parents, Pasquale and Esther, who encouraged and believed in us from the very beginning. We operate with a spirit of humility, cooperation, compassion, and hopefulness – just as our parents taught us.
Four Siblings: One Mission
It’s no secret that there continues to be
countless obstacles that prevent people from getting
diagnosed properly and treated effectively.
NELAD: Where Education, Advocacy, Resources, and Support-
All Join Hands to Help…
Our four main goals are:
1) First and foremost, to diminish the suffering of individuals and their loved ones with Lyme and its associated diseases
2) Provide access to proper education, testing and treatment, with opportunities for financial support
3) Work collaboratively with other advocates and organizations
in order to maximize the
assistance people and their families need and deserve
4) Support research on Lyme and other vector–borne diseases
We are the DiBara family, seen here, in a portrait we gave to our parents in 1990. In addition to the hairstyles, much has changed since then. We all suffer with Lyme disease and other associated illnesses. Many of our children, spouses, and other family members have also been diagnosed and treated.
Darlene, the youngest sibling (front), was the first to be diagnosed in 2013, while she struggled to maintain her teaching position in Massachusetts. Before we found a doctor to help her, she had been misdiagnosed by 20+ practitioners-and one even recommended a specialist for her to be evaluated for an ALS diagnosis. After that suggestion, her health and spirit declined rapidly. She truly thought she was going to die, and needed to find someone to care for her sons, who were also ill. Our family was devastated, terrified, and felt powerless. Our story begins with Darlene and 'Lyme,' -but our legacy is this foundation, which also honors the memory of our loving parents, and all they have taught us.
Four of us are co-founders of NELAD Resource Foundation. One of our siblings, our brother, Matthew, suffers from Dementia/Alzheimer’s, with frontal lobe atrophy- a devastating implication from an undiagnosed vector-borne illness. He, unfortunately, is not able to assist us with our mission.
There is much work to be done . . .
*For your convenience, our website and Facebook page contain links to other sites, hosted by third parties that support our mission which is: “to be a vital resource for people struggling with Lyme and Associated Diseases by helping them to access effective treatment through education and advocacy, while offering opportunities for financial and emotional support.”
*Northeast Lyme and Associated Diseases Resource Foundation (NELADRF) provides no guaranties or assurances as to the validity of any information contained on its website and Facebook page, including sites hosted and administered from third- parties.
*NELADRF is not responsible for the content of these websites, and as such, does not assume any liability for the content or use of these websites.
*NELADRF does not endorse any specific website content, non-profit organization, company, advocacy groups, product, medical treatment, medical provider, or services referred to on its website and Facebook page, including those entities that are actively involved in supporting our mission through partnerships (charity, products etc.).
*Northeast Lyme and Associated Diseases Resource Foundation (NELADRF) is not engaged in rendering medical advice and services of any kind.
*NELADRF does not endorse any medical provider, medical services, products and treatment referred to on its website and Facebook page including medical providers, medical services, products, and treatment offered by cited websites that are hosted by third parties.
·*NELADRF’s website and Facebook page do not offer medical information as a substitute for contacting qualified and/or licensed medical professionals for advice, diagnosis, treatment, and other medical services.
*You should not disregard or delay getting medical advice, treatment, or other medical services because of any information on this site, including information that is offered by websites hosted by third parties and third-party published articles and books. Always seek advice from your qualified medical practitioner(s) and other health care professionals, and do not rely on the information provided on the NELADRF website and/or Facebook page.